GRN gene: When genetic information upends life

Rosa Rivoira was 25 and her sister Carmen was 29 when they received the diagnosis that their mother, the Argentine architect and visual artist Eugenia Streb, had frontotemporal dementia. Shortly after, they learned the results of their own genetic testing. “We are carriers of the mutant gene — that is, we tested positive, but it brought us nothing positive. At that moment we thought: now what do we do with this information?” Rosa said one afternoon in April 2026 at her parents’ home in Palermo Viejo.

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